Sclerosi laterale amiotrofica, SLA, il sito di Michele Riva, la sua storia, il suo libro : IL RAMARRO VERDE.
   
  AMIOTROFIC LATERAL SCLEROSIS, ( ASL ) the web site Michele Riva, her history and her book: THE RAMARRO GREEN .
  MyTobii
 
COMPUTER AID TO EYE ORDER (communicating)

I had heard or read something in some merit year fà, but I had not understood well how worked and above all thing agreed to do. I was survivor from the intervention of tracheostomia and even though I was happy of to make still part of this world ....(prima I did not succeed more to breathe and saved myself for a breath). The fact that did not be able more to emit some sound from the mouth how to speak or however ask help had become a true and actual drama. There it was then the matter of the physiological requests, besides the positions of the body, well to awaken itself and to discover of not to have more the use of the word é really a difficult thing to accept. Still in the bed of hospital it had received the assistance of the phoniatrists, a gracious woman doctor that it is called Alessandra and from an its collaborator, also she very nice that me fecero see a transparent plastic sheet with printed the letters of the alphabet. I named it table FLAVIANA, in honor to the kind one girl.... Imparai soon the use, was already something with respect to first that I was completely mute, at least hour even if slowly at least could do qualca request of leading importance. Venni dimiso from the hospital and between the family wall of house the problem of the communication itself even more serious fece, the friends came and seeming to find you and I did not be able not even to say the 4 sensible words of welcome. Already because the table FLAVIANA not easy é to use and who assists you do not always can do from interpreter to every person that comes to to make you visit. And then in the general embarrassment itself mute fà stage, agreeing with the eyes with the usual wink of a lot in a lot.

THE TURN

Now resigned to the new silence a day during a neurological visit to house the Dott. Bald (of the hospital Windlasses (TO)) talked me about these aids, of the difficulty to the prescription aside of the SSN and of the costs high aimé. We hypothesized a test to residence with one of the products then on the market, but from the services a pò limited, however to a price of sale to the public one done not raise. I experienced it three days and enthusiastic rimasi of the test, finally I could speak, but not to go in internet or to send e-mail and the less sms to the cellular. Case wanted that from there to some day also the gracious phoniatrists of the San Luigi invited me to a demonstrative test I press their hospital department, I had a periodic visit already programmed I press the hospital and we combined the appointment. About is the produced more developed tecnoligico present on the market, in a position of to do what before inconceivable to who had not had
the use of the hands. To the test feci the knowledge with Alberto Cats, product manager of the SRLABS.

Rimasi pleasantly hit from the capacity of the aid, the computer tool is presented immediately of easy apprehension to the use, also for who like me é a self-taught person in the information technology is found immediately to actual comfort. Feci the test and the oretta at my disposal vanished in a lightning flash, rimasi to fix the ceiling when me tolsero the monitor from in front the face.... and I reengaged in the mute role of patient.

Feci like a start like when you sottraggono to your ignorance something of hand, and something flew off in my mind!
....

The very high cost compelled to do me a series of reasonings between me and me, but the desire to be able to obtain the my tobii was too strong and decided there and then that that tool that could have made to return to live have to be me MINE!. Salutaio the Mr. Alberto Cats with the secret thought "a lot we two we review ourselves", and me I returned of it dejected dejected at home. But the strategy to have the my tobii very slowly is doing space in my mind. Or rather the strategies were two, the before was that of to activate all my friends and knowing to throw a large deep subscription, the second one was what seemed me plus logic and right: this aid é in a position of to make me return to live and therefore of to increase the quality of the life of a sick one, and correct that is the HEALTH SERVICE NATIONAL to give me it it in Of use!!. The problem and that in the rate the aid not and cited and was necessary to open a breach in the system, creating a precedent to Regional level, easier enterprise to say itself that to do. But it seemed me just so, and then I had a change in more with respect to a lot of persons, my ace in the sleeve was that of to have done political in zone and therefore I knew like "to move me". (in the wide sense of the word seen that I am paralized to read) Now I had all in mind, and with the table dictate FLAVIANA an open species of letter directed to friends and knowing scattered wherever, the letter ebbe the right resonance and shakes the good heart of the summits ASL and Regional about of health, tant' é that actual in these days the Region Piedmont stà to approve a It deliberates that normerà the allocation of the communicating. In reality we have alone anticipated of an I annex the instructions of the Minister Livy Turkish that this summer allocated 10 millions of euro for the communicating, but to today a lot of regions did not do the adequate steps for it the criteria of
allocation. Ricevetti the my tobii 119 next day the test.

The communicating one itself é pointed out quite to the of above of the expectations, in these intense months of utilization showed a reliability from premium product, comparable to the high aerospace technology or of the equipment medicali salvavita. Besides the technical office business and constantly to the work to optimize the software and to supply the periodic updatings. I had the occasion of to know the ing. Paola Aquino (Product and Quality Engineer) person professionally very gotten ready and kind, always ready to give technical advice.

I returned to live also thanks to this technological tool, to the persons that agreed to do myself it have I dedicate it a thought all of the days, and I will not be able ever to thank the enough. 

Michele Riva.
 
   
 
Questo sito web è stato creato gratuitamente con SitoWebFaidate.it. Vuoi anche tu un tuo sito web?
Accedi gratuitamente