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THE ILLNESS and the DESIRE TO LIVE.
The first symptoms go back to the end of 1999, I had noted that the left hand had lost part of its force, there and then I did not give importance to the thing, I had a handbag twenty-four hours, of those rigid with the edges of aluminum and the central panels black and simply hour I carried it with the hand right hand. But in the turn of some month all of the left limb had lost 50% of its force. Decided to speak it to my doctor of family that immediately me fece do some analysis, the analysis emphasized that there was something of weird, tant' é, that venni given shelter to for 5 days for of the assessments I press the hospital San Luigi of Orbassano (TO), the diagnosis was clear... and tell me: kind Mr. Shore.... she has the AMYOTROPHIC LATERAL SCLEROSIS !!. Not capii immediately the seriousness of the diagnosis, or rather I thought between myself and me, if was a serious illness would have called it CENTRAL sclerosis amiotrofica!, but the illusion little durò. At home I consulted the medical encyclopedia and internet, and been a heavy blow between head and neck, for myself but also for the mine family. I took it badly, a lot badly in practice I refused every care, I had 41 years and I did not succeed to give me an explanation because actual to me?, I should identify a cause, a person in charge that had incited this badly terrible and cruel, but us not é a person in charge, and if in future the medicine will discover the causes
inciting, that will be a big day for all of the humanity, I strong Of a group of forty of years with a health of iron I did not know to give myself an explanation and I had not peace. We were at May 2000, and for the successive 5 years the illness I had continued its slow but inexorable course, to October 2005 I did not move more the superior limbs, the legs did not sustain me more in upright position and what and worst I breathed to toil, weakened in the physical one and in the spirit, with a loss of weight of beyond 25 kilos, I was dying, and knew it very well. A morning arrived a respiratory crisis, lost immediately knowledge, me fecero of urgency the tracheostomia saving me the life for a breath but I went in coma and taken again me alone after 10 days in department of resuscitation. I had touched the fund, and when it is touched the deep one further down goes not.... If it is wanted it is able however to go back!, and this and what I did I, in the days to follow they put me the peg, (survey to feed me directly in the stomach), and very slowly I took again weight and vitality. The more attractive thing I have it discovery in the successive months, the ILLNESS ITSELF AND STOPPED!, unfortunately to an advanced stadium, to two years and means from the respiratory crisis
Considerable I have taken again, I am near my weight it forms and I succeed to move a bit the legs, that until enough to drive means the joe-stik the electric carriage, and to command a series of remote controls positioned at the bottom to the bed. Who it enjoys of excellent health and fà the common things that the life asks for can do the following question: but that life and this?. Well then, I can ensure yourselves that seen from the of inside there are delights and large emotions, who lives in the inconvenience and in the difficulty, rejoices also for the small things, and are the things that generally not even note themselves, and that also to me before escaped. The fact that the illness is arrested itself in its degenerative trial has me given a further office, besides the found delight of to live now I want to fight publically the SLA. To fight it also for those sick persons that they hear itself like I I felt me in the beginning, with the world on, losing the desire to live. Fighting itself from also a new justification to if same, and if then arrive also of the important results and the confirmation that with the actual determination beat down also the walls!. It is necessary to aim on the scientific search on the rare illnesses like the SLA, if we do not make hear we sick our voice who should do it ??!!. If we sick together to the ours family we do not scream to big voice that are the daily problems, that the assistance to house, the problems with the Health Service National, the aids that wait for us of law and the quality of the life allow to improve us, then WHO SHOULD DO IT??!. Certainty the founding like the SSN have the task of treating us and to assist us, but and well that we do present to all our presence, our necessities. Instead, you will have noted all that on the newspapers
and to the tg speak alone of euthanasia, of someone of those that it would want fine west to the sufferings and that it asks even if alone a pò of respectful silence. In those cases the means of information awaken themselves!, the politicians itself riempiono the mouth doing a dustcloud around and on the skin of the unfortunate person. Already because the death it does news, above all if announced, while the life no, you can announce to the whole world that want to live, that ami the life!, but discover that does not interest almost to no. We experience to make to do a fine dustcloud on the little search that it is done in Italy, we experience to make the middle mass of the abroad brain drain to speak!. We experience to make to speak a little more of ourselves, and surely we will have some benefits, is in limits of right that in limits of hope for a care in a position of to save us the life.
Michele Riva.
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